Another GVH flair Well…I don’t think it is classified as “another flair” being as it hasn’t fully gone away since it started in April…so I guess I should call it what it is…chronic GVH ? …
post bone marrow transplant
My Why’s
Why it matters to me I have thought long and hard about how to write this, and I finally feel like I have captured my truth. I have noticed a trend that tears my heart …
Learning to live again
I like to reflect back on times in my life where some of my biggest lessons came from. Throughout my life, I have watched a few of my closest friends struggle with anxiety and/or depression. …
Keep going, Keep growing
Keep going, Keep growing These past few weeks have been hard for me…for several reasons. Me having a GVH flair up around Thanksgiving, got a bit better, caught a cold that moved to my chest, …
Trending back up
Trending back up I am coming out of the fog that has been wrapped around me for the past 10 days from a GVH (graft vs host) flair. I always look forward to this day …
2 years since Bone Marrow Transplant
I really cannot believe that it has been 2 years since my first of 4 days straight of heavy duty chemo before my bone marrow transplant. I have been looking back videos I recorded and …
Ahhh…the beach
I am on cloud 9 around here! We went to the beach this weekend and I am still feeling the feel great vibes of what a wonderful weekend it was. We left Austin on Saturday, …
Untitled Post
Every kind of therapy Well, I am back at it. Head therapy Physical therapy. These massive highs and lows of dealing with chronic GVH, have gotten to me into a bad head space. I knew …
Post Bone Marrow Transplant
I can honestly say I never read all the warnings of what could happen with medicines, especially chemo…I figure why set up a list of maybes in my head? Because those maybes creep up in my …